News & Updates

Patient Safety Awareness Week March 2018

Posted on Mar 14, 2018 in Thinking | 2 comments

Patient Safety Awareness Week March 2018

Staying Strong  – Using Your Voice This week is National Patient Safety Week, March 11 – 18. Although we lost our daughter, Talia —an EDS zebra—due to reckless and negligent care, We find it difficult to feel cheerful about this kind of national awareness program. On the one hand, perhaps it does work as a reminder to medical providers that keeping patients safe is paramount. On the other hand, if doctors, nurses, and hospital personnel—the people in charge of our care—need to be reminded that keeping their patients safe is...

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Mike Baker Wins Prestigious 2018 Selden Ring Award

Posted on Feb 12, 2018 in Thinking, Uncategorized | 2 comments

Mike Baker Wins Prestigious 2018 Selden Ring Award

Our daughter, Talia, has been in the news twice in the last two days—first in the Seattle Times on a follow-up article by Mike Baker about our work here at Talia’s Voice, and today because he and fellow journalist Justin Mayo won the prestigious Selden Ring Award for their work in investigative journalism. We are thrilled for Mike, whose work shone a light in some very dark corners at Swedish Hospital (Cherry Hill). The negligence of the care Swedish did (and did not) provide meant Talia was robbed of her own life, and stolen from us forever....

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Talia’s Voice in the News

Posted on Feb 12, 2018 in Doing | 1 comment

Talia’s Voice in the News

On February 11, 2018, the annivesary of Talia’s airway occlusion and coma, Mike Baker of the Seattle Times published a story about the work we are doing here at Talia’s Voice. As Jeff and I relive the awful details in “real time” through flashbacks to 2014, we are reminded again of how important and necessary our work is. No matter how long it takes, we will work to change the culture in medicine, to make listening and communication values in and of themselves. Not only will this lead to compassionate care that feels better, but it will keep...

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In Healthcare, Race and Gender Still Make a Difference—and that’s not good news

Posted on Jan 14, 2018 in Thinking | 0 comments

In Healthcare, Race and Gender Still Make a Difference—and that’s not good news

We adopted two kids from Ethiopia eight years ago, a country rich in culture but very poor economically; a place where there is one doctor per about 48,000 people (as compared to here where there is one doctor per about 300 people). Up until a few years ago, that number was more like one in 100,000. Recognizing the need for better healthcare, Ethiopia expanded the number of medical schools in one fell swoop, opening 13 new ones in just a few years. While that has increased access somewhat, unfortunately the medical training doctors-to-be...

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Shout Out to Marin General Hospital

Posted on Nov 29, 2017 in Thinking | 2 comments

Shout Out to Marin General Hospital

While certain things in life are predictable, many are not.  Jeff and I mapped out, for example, our first two pregnancies and had our babies right on schedule. Graduate school for me, medical school for Jeff—these were steps we prepared and planned for in our lives. But other things came as surprises. We were not people who “always knew” we’d adopt, for example; yet that blessing in our lives has been especially lovely. And I never could have predicted I’d have a child die, much less that it would be due to medical negligence and that I’d...

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Second Opinions

Posted on Oct 27, 2017 in Thinking | 2 comments

Second Opinions

The article linked below is an egregious story about a woman whose medical care was handled terribly. The patient’s nurse practitioner misread a test result and neither of the physicians she was referred to caught the error. (Did they read the test results themselves, or just rely on the nurse practitioner’s interpretation?) The patient ended up with both breasts and her uterus removed unnecessarily before she, herself, discovered the mistake the providers had made. This Washington Post article raises all kinds of questions (i.e. who reviews...

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Tell Your Story (with a chance to win)

Posted on Oct 9, 2017 in Thinking | 0 comments

Tell Your Story (with a chance to win)

Talia’s Voice is already coming into contact with other non-profits that are working to improve the patient experience. Our particular focus at Talia’s Voice is on bringing about a culture change where communication and listening (at all levels of care!) are at the heart of medical practice. Just in the weeks since we started our work publicly, we’ve heard from individuals who want to “do something” and other organizations that already are. We just received an email from the directors of Patients’ View Institute, and they are looking...

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Apples and Or…egon Health and Science University Students

Posted on Oct 6, 2017 in Doing | 4 comments

Apples and Or…egon Health and Science University Students

It’s apple season in Oregon and the fruit is ripe for the picking—so many varieties, so much bounty! There is a range of flavor, size, color and crispness to choose from. Jeff and I spent Wednesday, October 4, interacting with medical students at OHSU, and, as with the season’s apples, appreciated the rich variety of ideas that came through their questions and reflections. We were looking forward to speaking with students and all of them were receptive to Talia’s story. It was apparent that Talia’s voice moved them. We found that medical...

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Oregon Health and Science University

Posted on Sep 28, 2017 in Doing | 2 comments

Oregon Health and Science University

On October 4, 2017, Dr. Jeff Goldenberg and Naomi Kirtner (Talia’s Voice founders) will be giving two presentations at Oregon Health and Science University (OHSU), where they will have the opportunity to speak with both 1st and 2nd year medical students, as well as to residents and faculty. Talia’s artwork will also be on display at the medical school, which always deepens the experience for those who are hearing about Talia’s life and death. We look forward to engaging with a range of people involved in the medical community when we head to...

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Talia’s Birthday

Posted on Sep 24, 2017 in Doing | 1 comment

Talia’s Birthday

Today, September 24th, is the birthday of our “unofficial” founder, Talia Goldenberg. She should be here celebrating her 27th birthday.  Instead, we spent the day celebrating the amazing person she was. Talia’s family gathered around a table of stuffed animal zebras–a gift from her aunt and which are the mascot for those who suffer from EDS (the disease Talia had).  Talia’s Papa baked cinnamon buns which she would have loved.  We ate them for her.  Each family member chose words or phrases they associated with...

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