What We’re Doing

Talia’s Voice in the News

Posted on Feb 12, 2018 in Doing | 1 comment

Talia’s Voice in the News

On February 11, 2018, the annivesary of Talia’s airway occlusion and coma, Mike Baker of the Seattle Times published a story about the work we are doing here at Talia’s Voice. As Jeff and I relive the awful details in “real time” through flashbacks to 2014, we are reminded again of how important and necessary our work is. No matter how long it takes, we will work to change the culture in medicine, to make listening and communication values in and of themselves. Not only will this lead to compassionate care that feels better, but it will keep...

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Apples and Or…egon Health and Science University Students

Posted on Oct 6, 2017 in Doing | 4 comments

Apples and Or…egon Health and Science University Students

It’s apple season in Oregon and the fruit is ripe for the picking—so many varieties, so much bounty! There is a range of flavor, size, color and crispness to choose from. Jeff and I spent Wednesday, October 4, interacting with medical students at OHSU, and, as with the season’s apples, appreciated the rich variety of ideas that came through their questions and reflections. We were looking forward to speaking with students and all of them were receptive to Talia’s story. It was apparent that Talia’s voice moved them. We found that medical...

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Oregon Health and Science University

Posted on Sep 28, 2017 in Doing | 2 comments

Oregon Health and Science University

On October 4, 2017, Dr. Jeff Goldenberg and Naomi Kirtner (Talia’s Voice founders) will be giving two presentations at Oregon Health and Science University (OHSU), where they will have the opportunity to speak with both 1st and 2nd year medical students, as well as to residents and faculty. Talia’s artwork will also be on display at the medical school, which always deepens the experience for those who are hearing about Talia’s life and death. We look forward to engaging with a range of people involved in the medical community when we head to...

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Talia’s Birthday

Posted on Sep 24, 2017 in Doing | 1 comment

Talia’s Birthday

Today, September 24th, is the birthday of our “unofficial” founder, Talia Goldenberg. She should be here celebrating her 27th birthday.  Instead, we spent the day celebrating the amazing person she was. Talia’s family gathered around a table of stuffed animal zebras–a gift from her aunt and which are the mascot for those who suffer from EDS (the disease Talia had).  Talia’s Papa baked cinnamon buns which she would have loved.  We ate them for her.  Each family member chose words or phrases they associated with...

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Patient Experience (PX) Policy Forum

Posted on Aug 28, 2017 in Doing | 1 comment

Patient Experience (PX) Policy Forum

Naomi Kirtner (founder) and Rita Ratotstitz (board member) are both looking forward to attending the Beryl Institute’s inaugural Patient Experience (PX) Policy Forum on September 19, 2017. The goal is to “engage in giving a greater voice in healthcare policy to those working to improve the patient and family experience.” Naomi is teaming up with Marin General Hospital as their patient/family advisor, and Rita will represent Talia’s Voice for our organization’s first time attending a big conference! This is an exciting one because it’s about...

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