What We’re Thinking

Patient Safety Awareness Week March 2018

Posted on Mar 14, 2018 in Thinking | 2 comments

Patient Safety Awareness Week March 2018

Staying Strong  – Using Your Voice This week is National Patient Safety Week, March 11 – 18. Although we lost our daughter, Talia —an EDS zebra—due to reckless and negligent care, We find it difficult to feel cheerful about this kind of national awareness program. On the one hand, perhaps it does work as a reminder to medical providers that keeping patients safe is paramount. On the other hand, if doctors, nurses, and hospital personnel—the people in charge of our care—need to be reminded that keeping their patients safe is...

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Mike Baker Wins Prestigious 2018 Selden Ring Award

Posted on Feb 12, 2018 in Thinking, Uncategorized | 2 comments

Mike Baker Wins Prestigious 2018 Selden Ring Award

Our daughter, Talia, has been in the news twice in the last two days—first in the Seattle Times on a follow-up article by Mike Baker about our work here at Talia’s Voice, and today because he and fellow journalist Justin Mayo won the prestigious Selden Ring Award for their work in investigative journalism. We are thrilled for Mike, whose work shone a light in some very dark corners at Swedish Hospital (Cherry Hill). The negligence of the care Swedish did (and did not) provide meant Talia was robbed of her own life, and stolen from us forever....

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In Healthcare, Race and Gender Still Make a Difference—and that’s not good news

Posted on Jan 14, 2018 in Thinking | 0 comments

In Healthcare, Race and Gender Still Make a Difference—and that’s not good news

We adopted two kids from Ethiopia eight years ago, a country rich in culture but very poor economically; a place where there is one doctor per about 48,000 people (as compared to here where there is one doctor per about 300 people). Up until a few years ago, that number was more like one in 100,000. Recognizing the need for better healthcare, Ethiopia expanded the number of medical schools in one fell swoop, opening 13 new ones in just a few years. While that has increased access somewhat, unfortunately the medical training doctors-to-be...

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Shout Out to Marin General Hospital

Posted on Nov 29, 2017 in Thinking | 2 comments

Shout Out to Marin General Hospital

While certain things in life are predictable, many are not.  Jeff and I mapped out, for example, our first two pregnancies and had our babies right on schedule. Graduate school for me, medical school for Jeff—these were steps we prepared and planned for in our lives. But other things came as surprises. We were not people who “always knew” we’d adopt, for example; yet that blessing in our lives has been especially lovely. And I never could have predicted I’d have a child die, much less that it would be due to medical negligence and that I’d...

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Second Opinions

Posted on Oct 27, 2017 in Thinking | 2 comments

Second Opinions

The article linked below is an egregious story about a woman whose medical care was handled terribly. The patient’s nurse practitioner misread a test result and neither of the physicians she was referred to caught the error. (Did they read the test results themselves, or just rely on the nurse practitioner’s interpretation?) The patient ended up with both breasts and her uterus removed unnecessarily before she, herself, discovered the mistake the providers had made. This Washington Post article raises all kinds of questions (i.e. who reviews...

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Tell Your Story (with a chance to win)

Posted on Oct 9, 2017 in Thinking | 0 comments

Tell Your Story (with a chance to win)

Talia’s Voice is already coming into contact with other non-profits that are working to improve the patient experience. Our particular focus at Talia’s Voice is on bringing about a culture change where communication and listening (at all levels of care!) are at the heart of medical practice. Just in the weeks since we started our work publicly, we’ve heard from individuals who want to “do something” and other organizations that already are. We just received an email from the directors of Patients’ View Institute, and they are looking...

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Patient Experience Forum

Posted on Sep 24, 2017 in Thinking | 1 comment

Patient Experience Forum

This past week, Board member Rita Radostitz and I had the opportunity to attend the Patient Experience Policy Forum (PXPF) in Washington, D.C. The goal of this new organization is to create public policies that will safeguard the patient and family experience, since it is well documented that the patient experience correlates with outcomes. The really unique thing about PXPF is their inclusion of actual patients and their families in the work at hand. It’s ludicrous but not a surprise that patients themselves have never been invited to the...

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Welcome

Posted on Aug 28, 2017 in Thinking | 0 comments

Welcome

Welcome to Talia’s Voice: Projects for Patients Safety. We hope our posts will spark conversations and generate discussions regarding various aspects of patient safety. Nearly every person has been or will be a patient, so we hope the posts in “What We’re Thinking” will be of interest to most everyone. There is a lot to consider when it comes to patient safety, and in particular, about the role of listening, hearing, empathy, believing, and communicating between personnel on medical teams and between providers and patients. We hope you’ll...

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What’s In a Name

Posted on Aug 28, 2017 in Thinking | 0 comments

What’s In a Name

Talia sprang into the public eye when Mike Baker of the Seattle Times published his story about her, “A Lost Voice.” In the article, he quotes from a letter Talia wrote to her teammates when she had to give up her dream of playing college soccer because of multiple ACL tears in her knee. In it, she declared emphatically that, in spite of everything, she was still a person with dreams, hopes, beliefs; that she remained “a person with a voice.” Years later, the many providers who failed Talia would steal that voice. It is truly...

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