Updates

NEW HORIZONS – Winter  2024

Posted on Jan 26, 2024 in Uncategorized | 0 comments

NEW HORIZONS  –  Winter  2024

We always admired that Talia was willing to take risks, personally, athletically, academically, artistically. I trace it all the way back to when she was barely walking, but climbed right up and out of her crib at 15 months. That “thunk” on the floor as she dropped to the other side deterred neither Talia nor me, her mother. I wasn’t sure how it could have happened and (stupidly) put her right back in her crib! It was nap time, after all. When a second thunk immediately followed the first, we understood that a fear of falling was not going to...

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We’re Not in Kansas Anymore

Posted on Oct 31, 2023 in Uncategorized | 0 comments

We’re Not in Kansas Anymore

In the Wizard of Oz, as Dorothy’s world changes from black and white to technicolor, she turns to Toto and says, “I’ve a feeling we’re not in Kansas anymore.” From the moment we lost Talia, our world did the opposite, changing from technicolor to black and white. We understood we weren’t in Kansas anymore either. Just like that we were in an unfamiliar place that we could never have imagined, a nightmare that altered our lives forever. We have worked hard to rebuild life in and around the absence of Talia, to make our way in the world with...

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Getting Things Done – July 2023

Posted on Jul 17, 2023 in Uncategorized | 0 comments

Getting Things Done  –  July 2023

As a child, Talia had a knack for figuring out how to… figure things out. When she didn’t have the skills she needed to do something, she would at first get frustrated; but soon she would become single-minded about learning how to do the thing, keeping at it with a laser-sharp focus until she had it down. When she was first learning to play basketball, for example, she understood she needed to be able to make lay-ups. And to be a well-rounded player, she knew it wasn’t enough to be able to make right-sided lay-ins—she needed the skills to go...

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End-of-Year Newsletter 2022

Posted on Dec 21, 2022 in Uncategorized | 1 comment

End-of-Year Newsletter 2022

 Our larger-than-life, lion-hearted brother-in-law, Gabriel Romano, died this month. His daughter (Talia’s first cousin who is herself a new doctor) and Jeff were by his side as Gabe took his last breath. He fought hard to overcome the particularly aggressive cancer he developed over two years ago. In that time, he experienced (and we witnessed anew) the best and worst of medical care: The specialist who—in spite of his expertise—absurdly trivialized Gabe’s symptoms and abnormal test results and sent him on his way rather than making sure it...

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Up and Coming 2022 – Patient Safety Research

Posted on Mar 1, 2022 in Uncategorized | 1 comment

Up and Coming 2022 – Patient Safety Research

February is always grueling for us—a long slog through all the moments, dates, and events that took Talia from us forever. To honor and remember Talia on this eighth anniversary, we are proud to announce that Talia’s Voice is sponsoring a significant research study to be conducted by the University of Washington and Stanford Schools of Medicine. We recently signed a Gift Agreement with UW and the piece below is the Addendum to the agreement that explains how and why this research is so important. We will be contacting you soon with further...

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As Summer Turns to Fall 2021

Posted on Sep 23, 2021 in Uncategorized | 0 comments

As Summer Turns to Fall 2021

  We’ve been active all summer on various task forces and committees working with the Collaborative for Accountability and Improvement  (CAI), Ariadne Labs (a center for health systems innovation at Harvard), and in conjunction with Institute for Healthcare Improvement (IHI). Our focus currently is on Communication and Resolution Programs (CRPs), and we are designing tools and curricula which will help teach CRPs to hospitals across the country. Through 18 months of training, these hospitals will understand better how to treat patients...

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Reflections on Racism and Bias in Medicine

Posted on Jan 18, 2021 in Uncategorized | 0 comments

Reflections on Racism and Bias in Medicine

Talia’s sister, Raya, recently went through an ectopic pregnancy. For those who don’t know, an ectopic pregnancy occurs when the fertilized egg fails to descend into the uterus and instead implants in the fallopian tube, where it is not and can never be a viable pregnancy but does keep growing. If left untreated, the fallopian tube will rupture—a situation that can be fatal. Raya had a dose of methotrexate (a drug used most often as chemotherapy in cancer patients)  to end the dangerous pregnancy and when the toxicity of the drug subsides,...

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Talia’s Voice During the 2020 Pandemic

Posted on Dec 1, 2020 in Uncategorized | 0 comments

Talia’s Voice During the 2020 Pandemic

“As a physician, I learned from caring for patients for years that when a loved one dies, it’s a tragedy; but when your loved one dies and you know that death could have been prevented, that’s a tragedy that haunts you forever.” Dr. Howard Koh, former Assistant Public Health Officer and Harvard physician, spoke these words recently while being interviewed on NPR about the coronavirus pandemic. And we concur: We remain haunted by Talia’s preventable death. What’s terribly upsetting about the coronavirus pandemic is the number of preventable...

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Swedish Donuts

Posted on Jan 30, 2020 in Uncategorized | 0 comments

Swedish Donuts

During Talia’s competitive soccer days, one nemesis was a team named the Strikers. But today we lined Talia up with, instead of against, the Strikers. Nurses from Swedish Hospital—where Talia died—are on strike to get Safe Staffing, to put Patients Before Profits, and they are United for Patient Safety. It goes without saying that we have a complicated relationship with Swedish. Obviously, there is almost nothing as intimate as a shared death—meaning we will be “in relationship” with Swedish forever, even if they remain a frustratingly silent...

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Year End Update and Donation Match Opportunity

Posted on Dec 12, 2019 in Uncategorized | 0 comments

Year End Update and Donation Match Opportunity

Happy December from Talia’s Voice! We’ve been busy! We continue to work in three areas or “lanes”: Speaking Out, Education, Research. And of course, they all intersect. To further support us in this work, someone has generously offered to match donations until the end of the year. You will find details below. In terms of speaking out and spreading our message, we recently returned from presentations in Pittsburgh (October) and DC (November). The American Society of Bioethics and Humanities (ASBH) medical ethics conference in Pittsburgh gave...

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