Updates

Swedish Donuts

Posted on Jan 30, 2020 in Uncategorized | 0 comments

Swedish Donuts

During Talia’s competitive soccer days, one nemesis was a team named the Strikers. But today we lined Talia up with, instead of against, the Strikers. Nurses from Swedish Hospital—where Talia died—are on strike to get Safe Staffing, to put Patients Before Profits, and they are United for Patient Safety. It goes without saying that we have a complicated relationship with Swedish. Obviously, there is almost nothing as intimate as a shared death—meaning we will be “in relationship” with Swedish forever, even if they remain a frustratingly silent...

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Year End Update and Donation Match Opportunity

Posted on Dec 12, 2019 in Uncategorized | 0 comments

Year End Update and Donation Match Opportunity

Happy December from Talia’s Voice! We’ve been busy! We continue to work in three areas or “lanes”: Speaking Out, Education, Research. And of course, they all intersect. To further support us in this work, someone has generously offered to match donations until the end of the year. You will find details below. In terms of speaking out and spreading our message, we recently returned from presentations in Pittsburgh (October) and DC (November). The American Society of Bioethics and Humanities (ASBH) medical ethics conference in Pittsburgh gave...

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Talia’s Voice Has a New Logo!!

Posted on Nov 12, 2019 in Uncategorized | 0 comments

Talia’s Voice Has a New Logo!!

  Some of you may have noticed the new logo that came out with our fall newsletter. We are pretty excited about it—handing out a business card just feels different with a logo that includes our girl on it! It was a team effort all the way around. Talia’s sister, Raya, really helped us hone in on what message we wanted to convey through the logo, and then came up with the idea of having Talia herself be the voice—even if that’s what she was denied in life. Niki Tomita, Talia’s good friend from Carleton College, was so helpful and calm as...

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Fall 2019 Newsletter

Posted on Nov 10, 2019 in Uncategorized | 0 comments

Fall 2019 Newsletter

Hello from Talia’s Voice (where we so wish Talia’s own cheerful voice could issue this greeting). We are eager to share with you about our growing organization and the work we are doing, and feel incredibly appreciative to those of you who make this work possible through your support and contributions. Medical care affects every one of us, and we can not bring changes to the system without you. We have spent this past year networking with leaders in the field of patient safety and medical harm. We are pleased to report that there really are...

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Patient Safety Awareness Week March 2018

Posted on Mar 14, 2018 in Thinking | 2 comments

Patient Safety Awareness Week March 2018

Staying Strong  – Using Your Voice This week is National Patient Safety Week, March 11 – 18. Although we lost our daughter, Talia —an EDS zebra—due to reckless and negligent care, We find it difficult to feel cheerful about this kind of national awareness program. On the one hand, perhaps it does work as a reminder to medical providers that keeping patients safe is paramount. On the other hand, if doctors, nurses, and hospital personnel—the people in charge of our care—need to be reminded that keeping their patients safe is...

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Mike Baker Wins Prestigious 2018 Selden Ring Award

Posted on Feb 12, 2018 in Thinking, Uncategorized | 2 comments

Mike Baker Wins Prestigious 2018 Selden Ring Award

Our daughter, Talia, has been in the news twice in the last two days—first in the Seattle Times on a follow-up article by Mike Baker about our work here at Talia’s Voice, and today because he and fellow journalist Justin Mayo won the prestigious Selden Ring Award for their work in investigative journalism. We are thrilled for Mike, whose work shone a light in some very dark corners at Swedish Hospital (Cherry Hill). The negligence of the care Swedish did (and did not) provide meant Talia was robbed of her own life, and stolen from us forever....

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Talia’s Voice in the News

Posted on Feb 12, 2018 in Doing | 1 comment

Talia’s Voice in the News

On February 11, 2018, the annivesary of Talia’s airway occlusion and coma, Mike Baker of the Seattle Times published a story about the work we are doing here at Talia’s Voice. As Jeff and I relive the awful details in “real time” through flashbacks to 2014, we are reminded again of how important and necessary our work is. No matter how long it takes, we will work to change the culture in medicine, to make listening and communication values in and of themselves. Not only will this lead to compassionate care that feels better, but it will keep...

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In Healthcare, Race and Gender Still Make a Difference—and that’s not good news

Posted on Jan 14, 2018 in Thinking | 0 comments

In Healthcare, Race and Gender Still Make a Difference—and that’s not good news

We adopted two kids from Ethiopia eight years ago, a country rich in culture but very poor economically; a place where there is one doctor per about 48,000 people (as compared to here where there is one doctor per about 300 people). Up until a few years ago, that number was more like one in 100,000. Recognizing the need for better healthcare, Ethiopia expanded the number of medical schools in one fell swoop, opening 13 new ones in just a few years. While that has increased access somewhat, unfortunately the medical training doctors-to-be...

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Shout Out to Marin General Hospital

Posted on Nov 29, 2017 in Thinking | 2 comments

Shout Out to Marin General Hospital

While certain things in life are predictable, many are not.  Jeff and I mapped out, for example, our first two pregnancies and had our babies right on schedule. Graduate school for me, medical school for Jeff—these were steps we prepared and planned for in our lives. But other things came as surprises. We were not people who “always knew” we’d adopt, for example; yet that blessing in our lives has been especially lovely. And I never could have predicted I’d have a child die, much less that it would be due to medical negligence and that I’d...

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Second Opinions

Posted on Oct 27, 2017 in Thinking | 2 comments

Second Opinions

The article linked below is an egregious story about a woman whose medical care was handled terribly. The patient’s nurse practitioner misread a test result and neither of the physicians she was referred to caught the error. (Did they read the test results themselves, or just rely on the nurse practitioner’s interpretation?) The patient ended up with both breasts and her uterus removed unnecessarily before she, herself, discovered the mistake the providers had made. This Washington Post article raises all kinds of questions (i.e. who reviews...

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