Updates
Oregon Health and Science University
On October 4, 2017, Dr. Jeff Goldenberg and Naomi Kirtner (Talia’s Voice founders) will be giving two presentations at Oregon Health and Science University (OHSU), where they will have the opportunity to speak with both 1st and 2nd year medical students, as well as to residents and faculty. Talia’s artwork will also be on display at the medical school, which always deepens the experience for those who are hearing about Talia’s life and death. We look forward to engaging with a range of people involved in the medical community when we head to...
Read moreTalia’s Birthday
Today, September 24th, is the birthday of our “unofficial” founder, Talia Goldenberg. She should be here celebrating her 27th birthday. Instead, we spent the day celebrating the amazing person she was. Talia’s family gathered around a table of stuffed animal zebras–a gift from her aunt and which are the mascot for those who suffer from EDS (the disease Talia had). Talia’s Papa baked cinnamon buns which she would have loved. We ate them for her. Each family member chose words or phrases they associated with...
Read morePatient Experience Forum
This past week, Board member Rita Radostitz and I had the opportunity to attend the Patient Experience Policy Forum (PXPF) in Washington, D.C. The goal of this new organization is to create public policies that will safeguard the patient and family experience, since it is well documented that the patient experience correlates with outcomes. The really unique thing about PXPF is their inclusion of actual patients and their families in the work at hand. It’s ludicrous but not a surprise that patients themselves have never been invited to the...
Read moreWelcome
Welcome to Talia’s Voice: Projects for Patients Safety. We hope our posts will spark conversations and generate discussions regarding various aspects of patient safety. Nearly every person has been or will be a patient, so we hope the posts in “What We’re Thinking” will be of interest to most everyone. There is a lot to consider when it comes to patient safety, and in particular, about the role of listening, hearing, empathy, believing, and communicating between personnel on medical teams and between providers and patients. We hope you’ll...
Read moreWhat’s In a Name
Talia sprang into the public eye when Mike Baker of the Seattle Times published his story about her, “A Lost Voice.” In the article, he quotes from a letter Talia wrote to her teammates when she had to give up her dream of playing college soccer because of multiple ACL tears in her knee. In it, she declared emphatically that, in spite of everything, she was still a person with dreams, hopes, beliefs; that she remained “a person with a voice.” Years later, the many providers who failed Talia would steal that voice. It is truly...
Read morePatient Experience (PX) Policy Forum
Naomi Kirtner (founder) and Rita Ratotstitz (board member) are both looking forward to attending the Beryl Institute’s inaugural Patient Experience (PX) Policy Forum on September 19, 2017. The goal is to “engage in giving a greater voice in healthcare policy to those working to improve the patient and family experience.” Naomi is teaming up with Marin General Hospital as their patient/family advisor, and Rita will represent Talia’s Voice for our organization’s first time attending a big conference! This is an exciting one because it’s about...
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